ALEX Dennis, of Glendenning, is passionate about making public transport more accessible to people with disabilities.
He has spina bifida which causes chronic back pain and leg weakness.
Mr Dennis was appointed an ambassador to raise awareness of the condition for Spina Bifida Awareness Week, which ends this Saturday, September 7.
He recently met with NSW Opposition spokeswoman for Transport Penny Sharpe and also co-hosted the forum Transport for All to talk about improving public transport and giving people with disabilities better access to the community.
Spina Bifida is a congenital neural tube defect which occurs during the early weeks of pregnancy when a baby's spinal cord fails to fully develop.
This results in permanent disability.
Mr Dennis said the most common misconception about spina bifida is that it was a disease.
"At the end of the day we have abilities, not just a disability; it shouldn't define us," he said.
Mr Dennis said disability service providers, such as Northcott, which has helped him for the past 10 years, are very important to people with spina bifida.
"Northcott has helped me apply for and obtain services and equipment such as wheelchairs and walking aids," he said.
Carolyn West, one of Australia's leading experts on spina bifida, said the risk of developing spina bifida could be reduced by 70 per cent if more people understood the importance of folate intake.
"Folate or folic acid needs to be taken when planning a pregnancy and for three months into the pregnancy," Dr West said. "The recommended daily dose of folate is 0.5mg for normal pregnancies and 5mg for women who have a family history of neural tube defects."