Imagine not being able to communicate to anyone.
Welcome the world St Marys youngster Annelise Buda, who suffers Rett Syndrome, a disorder that affects the brain’s growth and which almost exclusively affects females.
There’s a 50 per cent chance she’ll develop seizures and heart and breathing difficulties later.
Since the Star first met Annelise five months ago, she has been diagnosed with ‘‘She still can’t walk or talk,’’ Annelise’s mum Donna said.
‘‘The biggest frustration is communication. She’s nearly four and when she cries, it’s a guessing act because we don’t know what she wants and whether she’s in pain, tired hungry or thirsty.’’
Friends and family rallied around the Budas to form registered charity Annelise’s Army last year to raise money for Annelise’s needs.
A bedroom has been transformed into a sensory room so Annelise doesn’t have to travel for therapy.
The next goal is to get a Tobii, an eye-tracking device to help her communicate.
The group has raised $1200 through a cake stall and shopping bus tour towards the $6000 needed.
Annelise’s Army has contacted several electrical retailers for assistance without any luck and turned to the Star to get the word out.
‘‘The Tobii would change our lives and give Annelise a better quality of life,’’ Mrs Buda said.
‘‘It would open up a new world to Annelise, which would make a big difference. She would be able to tell us what she wants and make everyone so much happier.’’
Mrs Buda is hopeful there are businesses out there to come on board.
‘‘The Tobii will give Annelise a way of communicating with us,’’’ she said.
‘‘Without it, we’re stuck. It would give her a choice in life because at moment, every choice has to be made for her.
A bank account has also be set up if people want to donate.
Details: 0422 580 856, email firstname.lastname@example.org or visit the Annelise's Army page on Facebook.